Summary of Rare Disease Activities in Ireland*

(Full report accessible below)

Full 2016 report on Rare Disease Activities in Ireland

*NB – The findings and conclusions in this report are those of the contributors and validating authorities, who are responsible for the contents; the findings and conclusions do not necessarily represent the views of the European Commission or national health authorities in Europe. Therefore, no statement in this report should be construed as an official position of the European Commission or a national health authority.

Information supplied by the Irish SOA Data Contributing Committee:

• Competent National Authority – John Devlin
• Orphanet National Representative – Eileen Tracy
• National Patient Alliance Representative – Avril Daly