Summary of Rare Disease Activities in Portugal*

(Full report accessible below)

Full 2016 report on Rare Disease Activities in Portugal

*NB – The findings and conclusions in this report are those of the contributors and validating authorities, who are responsible for the contents; the findings and conclusions do not necessarily represent the views of the European Commission or national health authorities in Europe. Therefore, no statement in this report should be construed as an official position of the European Commission or a national health authority.

Information supplied by the Portuguese SOA Data Contributing Committee:

• Competent National Authority – José Alexandre Diniz
• Orphanet National Representative – Mario Carreria
• National Patient Alliance Representatives – Marta Jacinto and Paula Brito