Summary of Rare Disease Activities in the United Kingdom*

(Full report to follow below)

*NB – The findings and conclusions in this report are those of the contributors and validating authorities, who are responsible for the contents; the findings and conclusions do not necessarily represent the views of the European Commission or national health authorities in Europe. Therefore, no statement in this report should be construed as an official position of the European Commission or a national health authority.

Information supplied by the UK SOA Data Contributing Committee:

• Competent National Authority – Edmund Jessop
• Orphanet National Representative – Ayo Ilevbare and Esiya Sichone
• National Patient Alliance Representative – Alastair Kent