The latest RD-ACTION workshop, on the topic of ‘Exchanging data for virtual care in the framework of the operation of ERNs’ generated several outputs of interest to the rare disease community:

Via this dedicated page – http://www.rd-action.eu/rd-action-workshop-on-sharing-data-for-virtual-care-in-the-ern-framework  – one can find:

• The PwP presentations
• The full report of the workshop, with summaries of the informative presentations and active discussion sessions
• A shorter, ‘highlights’ document featuring the key practices and principles highlighted in the workshop discussions

The discussions from the final session of this workshop will be a basis for the next RD-ACTION WP6 workshop on ‘Using standards and embedding good practices to promote interoperable data sharing in the ERN framework’